tag:blogger.com,1999:blog-25745858.post114976362289985350..comments2023-11-30T13:49:20.131+00:00Comments on NASIM MARIE JAFRY: ON WRITING, READING and CHRONIC ILLNESS: Too Much Babblingnmjhttp://www.blogger.com/profile/05477643084619789093noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-25745858.post-80513404286311478212006-12-27T02:56:00.000+00:002006-12-27T02:56:00.000+00:00If anything has pissed me off in recent months it'...If anything has pissed me off in recent months it's this cult-like evangelical lightning process. I've had so much grief about this frome one of my local ME group members who stated that people were blocking their recovery by their 'self-limiting beliefs'. I mean, it's a fucking <b>support</b> group and he was coming out with crap like this.<br /><br />The fact is there are many illnesses and conditions that come under the CFS umbrella - one person's slow recovery from glandular fever is another person's 'ME', for example.<br /><br />I've been ill for a long time and I've heard of many hyped up miracle cures, but if it's a miracle today, it will still be a miracle in a year's time. Magnesium injections, anyone?<br /><br />I have also stated to my local ME group that any lightning process practioner can come to my house and do this therapy for free. Bring it on.Digitalessehttps://www.blogger.com/profile/03594604246460921921noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-1150149967897684092006-06-12T23:06:00.000+01:002006-06-12T23:06:00.000+01:00The adrenalin loop is interesting though . . . the...The adrenalin loop is interesting though . . . the two treatments which have both helped me a bit were: intravenous vitamin C which I believe can reduce levels of stress-induced cortisone; and also ACTH injections which I think would *increase* the levels of cortisol, so why they both helped I do not know, but the effect was instant, especially the ACTH, I went from feeling like I was dying to feeling like I might live another day, this was in early eighties at one my most ill points.nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-1150111266115819782006-06-12T12:21:00.000+01:002006-06-12T12:21:00.000+01:00nmj - I wish we could get an opinion from one of t...nmj - I wish we could get an opinion from one of the top ME doctors.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25745858.post-1150108060111344612006-06-12T11:27:00.000+01:002006-06-12T11:27:00.000+01:00hey anonymous, i can't help thinking that the ligh...hey anonymous, i can't help thinking that the lightning process is just another fashionable treatment -in late eighties it was all anti-candida diets, and people were claiming complete recoveries, when in fact they didn't have ME in first place... i've also read the testimonials on the website, and it seems that these people genuinely did have ME in varying degrees of severity, but it scares me a bit that we are being asked to be 'responsible' for our symptoms by controlling our thoughts, it seems absurd in fact! when i have had severe relapses over the years, it has NOT been because i was worrying about relapsing it's simply because i had overdone it . . .i could understand if this therapy was helping people feel less panicky, but stopping the entire illness more or less instantly is simply baffling, but then the whole illness is baffling & maybe i am being too dismissive... i agree with ciara, treat me for free & i'll pay double or triple to be cured...am not holding my breath though!nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-1150100325568751932006-06-12T09:18:00.000+01:002006-06-12T09:18:00.000+01:00I don't know what to think about it all. If we wer...I don't know what to think about it all. If we were in an adrenaline loop, wouldn't doctors and scientists have noticed this already? <BR/>But on the website there are lots of testimonials that seem really genuine. <BR/><BR/>I wish there could be a proper trial to see if it really works, and if it does really work, we could all go and do it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25745858.post-1149784806246034312006-06-08T17:40:00.000+01:002006-06-08T17:40:00.000+01:00C, Thanks for corroborating what I said, I was rea...C, Thanks for corroborating what I said, I was really angry when I wrote that post, I just can't bear all the evangelical crap that goes along with these miracle 'cures', though between you and me and a million bloggers, I could probably do with some lightning treatment for dealing with bad relationships!nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-1149781211934629122006-06-08T16:40:00.000+01:002006-06-08T16:40:00.000+01:00Hi nmj,re lightning process, I just DON'T understa...Hi nmj,<BR/><BR/>re lightning process, I just DON'T understand it either. Yes, our physiology is hypersensitive to adrenalin in ME, but it can't be the whole story. Can it??!!! What about gene and viral findings etc?<BR/><BR/>I'd challenge ANY therapist: treat me for free. No recovery, no fee. If I recover after therapy, I'll pay twice or three times the fee. None of them agree to this.<BR/><BR/>-CiaraCiarahttps://www.blogger.com/profile/01908098909334331994noreply@blogger.com