tag:blogger.com,1999:blog-25745858.post1518272241667274992..comments2023-11-30T13:49:20.131+00:00Comments on NASIM MARIE JAFRY: ON WRITING, READING and CHRONIC ILLNESS: Prof Julia Newton's excellent severe ME research; & active verbs & buffoonerynmjhttp://www.blogger.com/profile/05477643084619789093noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-25745858.post-54387689915041675842015-09-01T20:38:57.541+01:002015-09-01T20:38:57.541+01:00What a refreshing read! Thank you for sharing.What a refreshing read! Thank you for sharing.Joneshttps://www.blogger.com/profile/05243741640850421996noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-54770252540280642622015-08-22T10:07:08.768+01:002015-08-22T10:07:08.768+01:00I often wonder how I would have coped in my bedbou...I often wonder how I would have coped in my bedbound days if the psychiatric lobby/Wessely school had taken hold, it would frankly have been intolerable. Luckily, I was treated appropriately - for a neuroimmune illness - by Behan, the cons neurologist who was also a specialist in ME back in early/mid 80s. My heart goes out to these who remain very severely ill, it is simply hell for them. Science *is* thankfully progressing. Answers will be found, we just need the ever important funding in place, and criteria for actual classic ME to be heeded.nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-62411579344520786452015-08-21T18:19:47.414+01:002015-08-21T18:19:47.414+01:00Thank you for the link to the forthcoming research...Thank you for the link to the forthcoming research re those with Severe ME by Dr Julia Newton. That is truly excellent to read of, as this group have been ignored for so long. I have reposted it on my Facebook page. <br /><br />Luckily for me I am not in this group, but am aware that some are so ill that they are often even cut off from taking part online with the rest of the ME community, and how hard it must be to suffer as they do. mermaidhttps://www.blogger.com/profile/09061098683835560915noreply@blogger.com