tag:blogger.com,1999:blog-25745858.post3398172839912015439..comments2023-11-30T13:49:20.131+00:00Comments on NASIM MARIE JAFRY: ON WRITING, READING and CHRONIC ILLNESS: Tweets & Kindles & Tulipsnmjhttp://www.blogger.com/profile/05477643084619789093noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-25745858.post-13522512902437988122011-05-16T12:11:48.202+01:002011-05-16T12:11:48.202+01:00Thanks, F, am ME'd out for now but will look l...Thanks, F, am ME'd out for now but will look later.<br /><br />Also, want to link to this:<br /><br />http://niceguidelines.blogspot.com/2011/05/congratulations-to-ellen-piro-president.htmlnmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-32308386048398699282011-05-16T06:47:48.506+01:002011-05-16T06:47:48.506+01:00Hi NMJ,
I don't know if you have seen this gr...Hi NMJ,<br /><br />I don't know if you have seen this graphic presentation of some of the key aspects of the PACE trial?<br /><br />http://vimeo.com/user6290140<br /><br />Graham McPhee has done a fantastic job of showing how these results might better be seen.<br /><br />Assuming of course his data are valid and the graphics reflect the said data, that is...<br /><br />Once upon a time, twas I who could do things like that [sigh]...<br /><br />No need to post as a comment - just thought you might like to take a peek xJackhttps://www.blogger.com/profile/02804867745121472685noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-41804769087615712012011-05-15T20:17:10.968+01:002011-05-15T20:17:10.968+01:00Hey Johan, As I said in my comment over at yours I...Hey Johan, As I said in my comment over at yours I really like when you suggest this as a weapon to fight the detractors:<br /><br /><i>We have a better skill set. ME/CFS doesn’t discriminate. We number teachers, nurses, engineers, housewives, technicians, chemists, biologists, accountants, pharmacists, medical doctors, secretaries, translators, psychiatrists, psychologists, journalists, yoga/teachers, scientists, linguists, computer experts, physiotherapists, managers, programmers, sales representatives, lawyers, politicians, writers, painters, photographers, musicians and even comedians.’ </i><br /><br />The problem is they have constructed such a bizarre & misleading narrative about our illness, we have essentially been stripped of who we are. I guess this happens to any patient population to an extent, we become the illness - at least in the eyes of medics, they do not know our pre-illness selves, after all. But this crowd seem to have little idea that we are as bright and talented as they are - or think they are. And I liked the way you articulated this. Since they ignore all biomedical evidence, we have to outsmart them!nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-12700257534638535502011-05-15T11:20:58.880+01:002011-05-15T11:20:58.880+01:00Thank you for linking to my blog. I usually write ...Thank you for linking to my blog. I usually write critical articles, but for May 12th I wanted something positive. I am glad you liked it and feel honored to be mentioned here.Anonymousnoreply@blogger.com