tag:blogger.com,1999:blog-25745858.post4461970261221888019..comments2023-11-30T13:49:20.131+00:00Comments on NASIM MARIE JAFRY: ON WRITING, READING and CHRONIC ILLNESS: Osler's Web author lambasts PACE trialnmjhttp://www.blogger.com/profile/05477643084619789093noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-25745858.post-28388650261336810632011-02-25T11:42:36.870+00:002011-02-25T11:42:36.870+00:00'I believe that most PWME find their own level...'I believe that most PWME find their own level of activity and find their own way of increasing their activities as their symptoms reduce in severity over time. The problem is that the process is very, very slow and the improvements in our health can be so small and incremental that an outsider would barely notice. We can't be forced into recovery.'<br /><br />That's the truth, Dig, but they want to zip us from A (bedridden) to Z (gymnast) by using therapies that treat us as psychiatrically ill. They refuse to accept that resting and pacing are crucial to our recovery and survival.nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-26891552493678195202011-02-25T01:36:14.774+00:002011-02-25T01:36:14.774+00:00I believe that most PWME find their own level of a...I believe that most PWME find their own level of activity and find their own way of increasing their activities as their symptoms reduce in severity over time. The problem is that the process is very, very slow and the improvements in our health can be so small and incremental that an outsider would barely notice. We can't be forced into recovery.<br /><br />My experience with *that* clinic, as I said before, has been nothing like their reputation would suggestI've had a fantastically supported CBT therapist. There's been no GET and the CBT consists of lifestyle management which is more like occupational therapy. Overall, my experience has been positive.<br /><br />The problem with my experience is that if I report it as 'helpful' then it will be seen as evidence that 'this approach works'. My version of CBT has consisted of adding rest periods and encouragement to pace myself and slow down instead of pushing against my limits constantly. Someone else with a less sympathetic therapist may be encouraged to do more than they are able to and then they're told off because the evidence shows that *their* approach really works and the evidence supports it. So, I'm not too convinced that when people are talking about GET/CBT they mean the same thing.Digitalessehttps://www.blogger.com/profile/03594604246460921921noreply@blogger.com