tag:blogger.com,1999:blog-25745858.post7951619830371536493..comments2023-11-30T13:49:20.131+00:00Comments on NASIM MARIE JAFRY: ON WRITING, READING and CHRONIC ILLNESS: Progress...nmjhttp://www.blogger.com/profile/05477643084619789093noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-25745858.post-80567553412590862662016-12-08T15:29:15.158+00:002016-12-08T15:29:15.158+00:00Hope your sternum a bit better. My daughter has ha...Hope your sternum a bit better. My daughter has had this ever since she had her 2 top ribs removed (thoracic outlet syndrome/blood clots). The best, she says, is massage...I know it requires a willing pair of hands, but Manon gets better relief for a couple of days with that than pain killers.<br /><br />Just read your comment about BPS rubbish/disregards for biomedical international research Nassim and yes it does concern me. But feeling utterly helpless in finding a way out of the ME rut. I watch my daughter fade... made the mistake of reading Osler's web which has left me totally gutted to think that all these years have lead to virtually no progress for PwME. We are putting savings into Invest in ME and the Open Medicine fund. Got to keep the spirits up and I feel these are the only organisations that really want results.<br />However I have also read your lovely book and am looking forward to Manon having a bit more energy to read.<br />Best,<br />Helen<br /><br />molivehttps://www.blogger.com/profile/07118502622989796478noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-26205155489415195042016-12-08T08:03:27.216+00:002016-12-08T08:03:27.216+00:00Sorry about the costochonditris, hope it doesn'...Sorry about the costochonditris, hope it doesn't last too much longer! <br /><br />It's good to see the latest advance in funding, let's hope the research leads to clinical progress. Crafty Green Poethttps://www.blogger.com/profile/02486633917197181851noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-17981886654500164012016-12-07T14:53:59.728+00:002016-12-07T14:53:59.728+00:00Hello and thanks for your comment, Sabine. I have ...Hello and thanks for your comment, Sabine. I have a constant microwaved wheatbag in bed with me! I have had this now for almost three months, it has bedded in, so I just hope it will fade away eventually. I am very prone to these kind of inflammatory processes, whatever the 'itis' - it will last longer than for non-ME people. Can't have steroids for eye pressure reasons...all the joys! But on I go, on we go.nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-25745858.post-23697838743173886392016-12-07T14:31:21.573+00:002016-12-07T14:31:21.573+00:00Sorry to read about the costochonditris (otherwise...Sorry to read about the costochonditris (otherwise excellent news about latest research findings). I have this a couple of times as a sideline of autoimmune vasculitis. I usually goes away by itself after a while. Hot water bottle helps. Of course, cortisone would work as well if you are up to it. All the best!<br />Sabinehttps://www.blogger.com/profile/09015827501648296977noreply@blogger.com