NASIM MARIE JAFRY: ON WRITING, READING and CHRONIC ILLNESS

‘Can there exist, in principle, a proper beginning to any story at all? Isn’t there always, without exception, a latent beginning-before-the-beginning?’ Amos Oz

Thursday, 21 May 2009

Hungry for change

I have such admiration for these medics.
Posted by nmj at 21.5.09
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Society of Authors

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Edinburgh Book Festival, 2009

Edinburgh Book Festival, 2009

About Me

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nmj
Scotland, United Kingdom
My autobiographical novel The State of Me was published in 2008 by HarperCollins. Based on my experience of the neuroimmune illness myalgic encephalomyelitis (ME), it's my weapon against the ignorance that prevails. I was diagnosed with ME in 1984 by a consultant neurologist after Coxsackie B4 virus. I remain ill today. I've been published in a range of literary magazines and was shortlisted for RLS Award (2005), Bridport Short Story Prize 2011 and Bridport Flash Fiction Prize 2012 & 2023. Links to more published writing below. In slow process of writing novella about my late Pakistani doctor father. Am of mixed heritage.
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Temporalities in Nasim Marie Jafry’s The State of Me by Laura Macdonald, 2024

Essay on The State of Me in Etudes Ecossaises, 2024

Shortlisted Bridport Flash Fiction Prize 2023

Delighted to have been shortlisted for Bridport Flash Fiction 2023 for 'Seeing the Light'. The flash can be read here.

Writers with ME - Lucy Writers Platform, 2022

My piece on writing with ME

Seven Novels that Prove Fiction can Grapple with Illness, 2021

Review of TSoM from Electric Lit

From Glasgow to Saturn, 2021

flash fiction: ALPHONSO

TSS Flash Fiction longlist, 2018

Longlisted TSS summer flash fiction award 2018: 'Elsa and the heron'

A Book of Banished Words, 2017

Contributed to A Book of Banished Words, Bird Editions, 2017

Bath Flash Award anthology, 2017

V happy to be in Bath Flash Fiction Anthology 2017, To Carry Her Home

The Well Made Project, 2015

Online art exhibition as part of London Creativity and Wellbeing Week 2015 (Day 3 has extract from novel)

The Istanbul Review, 2014

Delighted to have flash fiction - previously shortlisted for Bridport - in issue 5 of literary journal The Istanbul Review. A simply gorgeous cover.

Scotsman, short story, 2014

'A Small Punishment' (previously shortlisted for Bridport).

'Dissecting Edinburgh', 2013

Medicine and Literature event.

BBC Alba documentary, 2012

I appear in part one of this BBC Alba documentary on ME. The neurologist who diagnosed me is in part two. More commentary on parts 1 & 2 here.

Comment Is Free, summer 2011

My contribution to a CIF article on living with chronic illness. The gross misrepresentation of ME by certain medics and health editors, their conflation of neuroimmune illness with 'chronic fatigue', undoubtedly makes having this illness worse. Thankfully, those voices are slowly and surely being drowned out by actual science.

From Glasgow to Saturn, 2011

'Parched': flash fiction in Glasgow University's literary journal.

50 Stories for Pakistan 2010

Contributed to fundraising anthology for victims of floods in Pakistan

Reviews I like

'Stylistically The State of Me is an easy, unpretentious read, peppered with acerbic internalisations that every ME sufferer wants to vocalise to every well-meaning person with a suggestion on how to get better. That said, there is no real bitterness to the book, quite the contrary, and the stories of those surrounding the narrator (nostalgically evoking the 1980s) give it many layers.' Mischa Hiller, author of Sabra Zoo and Shake Off '

'The amazing feat of this novel is to give one a sense of the pain and frustration of this condition, and yet to be bouncing with life, the inner life and the irrepressible psyche of Helen' Elizabeth Baines, author of The Birth Machine

'They say the ending can make or break a book, and the ending of The State of Me is beautifully crafted and uplifting' Lisa Glass, author of Prince Rupert's Teardrop

A remarkable first novel ... word perfect on neurological ME'
Tony Britton, Publicity Manager, ME Association


'A really enjoyable read, with a wicked sense of humour... It took a little time to get into, but after a while it was like The West Wing, I was hooked and did not want it to end' John Barrett, MP for Edinburgh West, 3 May 2009

'Nasim writes in spare, measured sentences. The effort is contained and elegant as if the author had to calculate each word, the length of each paragraph before attempting it' Peregrinations blog

'...is it at all possible that your book is more about the destabilising power of love than ME? I don't know how you'll receive this - and I'm not sure how to describe it, either - but the ME, whilst central, is also (I know, this sounds ridiculously contradictory) secondary, a kind of despairing background noise to the main event' Periodic Englishman, writer and blogger

'It is a balanced, non-didactic account of a young person grappling with a dreadful illness. All doctors will benefit from reading The State of Me' NHS blogdoctor


ME Case Definitions, 2011

Review of ME case definitions.

velo-gubbed

(velo = bike, gubbed = exhausted, velo-gubbed legs = the way your legs feel when you have M.E, as if you've been doing the tour de france, except you haven't been near a velo.)

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