So BACME (British Association of CFS/ME) have finally launched their website and are looking for feedback.
I'm immediately alarmed by their 'cool brand, ME with street cred' approach: I think it somewhat trivialises a neurological illness to add an umlaut, make it funky. Do these people think they are selling Scandinavian furniture or yoghurt? And correct me if I am wrong but does the umlaut over 'm' even exist?
Of course, when you look at the names behind BACME - Esther Crawley and Alison Wearden - you realise you just can't take this site seriously - and I hope others don't. They seem desperately to be trying to appear to believe that ME is neurological but everything about their language and tone - not to mention support of PACE and the Lightning Process - tells us otherwise.