‘Can there exist, in principle, a proper beginning to any story at all? Isn’t there always, without exception, a latent beginning-before-the-beginning?’
Amos Oz
A very good question, M. The psychiatrists & the non-believers - have been delegitimizing a neurological illness for years, it is simply bizarre. Their research into ME is done using people who don't actually have ME. Everything is flawed. Yet, they continue to spin their narrative and get way with it.
Thanks, NMJ, for the link to this. I am going to print off what he has made available and try to read all about it, even though that kind of thing (absorbing information) does my head in.
I've probably told you this before but, I saw Antony Pinching a few years back, when he worked at Barts in London. He was the only medical person up to that point who treated me with complete respect and seriousness. He took on board my hyper-sensitivity to even tiny doses of the kind of medication (amitryptiline etc.) that was being offered then. He did mention the idea of a "structured activity programme" but only in terms of helping me to stay within a 'safe zone', which was incredibly difficult at the time, with children at home. On my second meeting he brought up the idea of CBT - to help me with "setting a safe envelope of activity that is compatible with your aspirations and with the restrictions of the illness." I never felt that CBT was being put forward as something that might deal with the illness itself.
I don't really understand what it is he is saying now, or what he stands for.
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I find this all rather suspect. Why do they want to hide it?
A very good question, M. The psychiatrists & the non-believers - have been delegitimizing a neurological illness for years, it is simply bizarre. Their research into ME is done using people who don't actually have ME. Everything is flawed. Yet, they continue to spin their narrative and get way with it.
Thanks, NMJ, for the link to this. I am going to print off what he has made available and try to read all about it, even though that kind of thing (absorbing information) does my head in.
I've probably told you this before but, I saw Antony Pinching a few years back, when he worked at Barts in London. He was the only medical person up to that point who treated me with complete respect and seriousness. He took on board my hyper-sensitivity to even tiny doses of the kind of medication (amitryptiline etc.) that was being offered then. He did mention the idea of a "structured activity programme" but only in terms of helping me to stay within a 'safe zone', which was incredibly difficult at the time, with children at home. On my second meeting he brought up the idea of CBT - to help me with "setting a safe envelope of activity that is compatible with your aspirations and with the restrictions of the illness." I never felt that CBT was being put forward as something that might deal with the illness itself.
I don't really understand what it is he is saying now, or what he stands for.
Erg, I feel all churned up about it.
hey signs, i have printed it out and plan to trawl my way thru it! it is hundred pages... but good to have it all collated in one go.
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