Last night I saw via ME Association that the long-awaited Scottish Good Practice Statement on ME-CFS were available online. I quickly scanned the guidelines, they look better than the NICE nonsense, but I still have to read them in detail. I was thinking, thank God I live in Scotland. Then I did a little googling and was chilled to discover how the process had almost been hijacked by so-called ME 'experts' neuropsychiatrist Dr Alan Carson and GP Dr Clare Gerada (who just happens to be married to Simon Wessely). This no doubt explains why her hugely ignorant comments read like propaganda. Neither Carson nor Gerada have published anything on ME before. Serious concerns about the final draft document not being fit for purpose were submitted to Nicola Sturgeon by patient/carers group in July. I'd like to know why the hell consultant neurologist Dr Abhijit Chaudhuri was not consulted about the guidelines? He is one of the few UK experts in ME, he took over from Professor Behan, who diagnosed me in 1984. But no, we have Dr Carson, who - silly billy! - admitted at one stage to confusing 'chronic fatigue' with 'chronic fatigue syndrome'. Chronic fatigue is categorised by WHO under ICD-48 as 'a mental and behavioural disorder', whereas 'chronic fatigue syndrome' (or ME, its real name) is categorised under ICD-G93.3 as 'a neurological disorder'. Just a wee bit different. I'm almost scared to read the guidelines now and I didn't sleep well, thinking of these scary, blinkered medics yet again putting their oars in. You have to wonder how ignorance comes so easily (and wilfully) to supposedly intelligent health professionals. If anyone reads the guidelines before me and finds good things, please let me know. Maybe we'll be pleasantly surprised.