Showing posts with label friends. Show all posts
Showing posts with label friends. Show all posts

Friday, 24 April 2020

Pandemic: foxes and sunsets and suicide


A couple of months ago, I saw a cat run across the garden with a pigeon in its mouth. I’ve never seen a domestic cat hunt such a big bird. The pigeon was upside down, white underneath. I did not see it being killed, just saw it being carried away.

I see foxes occasionally, once a year. One ran across the garden last week. It tarried for fifteen seconds or so on the wall, as if it were checking something. I was able to get a photo. It was huge - red and grey. Beautiful. I’ve seen it again since. Twice in a week.

I want it to come every day.

In between the pigeon being killed and the fox standing on the wall, uncommon events in this garden, the covid19 pandemic has impacted massively in the west. I recall watching reports from China in January, but of course did not think at all it involved ‘us’.

Now we are all affected.

Nothing feels real. 

Being chronically ill, I am used to spending long spells of time indoors, semi-isolated, but now the whole world is the same. It's getting a crash course in isolation and illness, in an alarming and dramatic way. The stuff of fiction.

Spring is happening, but it's dislocating. Daffodils have bloomed and withered, tulips are opening, the sun is warm if you shield yourself from the Scottish wind, but you cannot ever relax, the dread of this coronavirus is always there.

Six days into the lockdown, the weekend the clocks went forward, I heard my childhood friend had taken an overdose and was in intensive care. He has a diagnosis of paranoid schizophrenia. The unfolding of the virus and the isolation it imposed was too much for him, he was simply overwhelmed. I had spoken to him four or five times the week before, which made the news of his overdose even more upsetting. Against all the odds, after six days in intensive care, he regained consciousness and after being treated for bacterial pneumonia was discharged to a surgical ward before being admitted to a psychiatric hospital, where I hope they will be able to look after him for as long as is needed. 

I remembered that when the clocks went back last October, my friend had called me to say he had  put his clock back at 5pm, in case he forgot. Before  the lockdown he was doing a writing class and I told him I would love to see his writing, and asked him to send me some. He said he wanted  to write a book and I told him writing a book was hard. I might just write half a book then, he replied. His mother has since told me it is poetry he has been writing.

What struck me when my friend was in intensive care and we did not know the outcome was that his mother, a close friend of my own mother’s, had been a huge support in the early seventies when my consultant anaesthetist father had taken his own life, living in the same town my friend and his mother still live in.

My current writing project is a (slow) fictionalisation of aspects of my father’s life. There is an early scene in particular, with withered flowers - hydrangea -  in this friend's garden in the 1970s. The scene has been in my head for many years, real, but now re-imagined in the novella-in-progress (I was delighted to discover a couple of  years ago, this poem by Rilke, 'Blue Hydrangea'). More than ever I've been thinking of the importance of storytelling. I have also been thinking of anaesthetists  as they are suddenly very much in the media – the experts on ventilators, so much needed in this crisis. In a 1960s' Polaroid, my father looks like a poet with his Paisley pattern cravate, drinking beer in Amsterdam.

The backs of my hands are cracked, my knuckles slightly bleeding, I've been overdoing disinfecting, using too much bleach, just so very afraid of getting infected from groceries/deliveries coming in. With ME your immune system is already in disarray, and we simply do not know how people with ME would be affected by covid19. It's too frightening to contemplate, given how unpredictably and aggressively this novel virus is affecting youngish, healthy people with no pre-existing conditions. There is talk in the medical community of how some covid19 patients are bound to develop ME afterwards. (Suddenly ME is respectable, the devastating illness you can get after a virus.)

In normal times, I spend much time sitting at my bedroom window watching birds and squirrels and sunsets. It's restorative, a gorgeous way to meditate and contemplate when you cannot do aerobic exercise. This process of contemplation has become even more important. Everyone is commenting on how much louder the birds are, they can be heard everywhere, surely a tiny silver lining of the pandemic.







Saturday, 29 November 2014

The Missing Story

A couple of months ago my friends lent me Tagore's selected stories, recommending one in particular, 'Kabuliwallah'. When I looked it up I thought I had the wrong page because the story was not there and after checking several  times, I realised the story was missing, it had been removed. So I read another couple of stories instead and loved 'Exercise-book', a story about a little girl who loves writing so much she will write on any surface she can get her hands on. His stories can be saccharine but there are gorgeous details, and unexpected harshnesses that stab you like drawing pins in a warm bath. When I mentioned the missing story to my friends they explained they had given me the wrong book, that they had another identical edition, and that 'Kabuliwallah' had indeed been carefully removed a long time ago to fax to someone. So we swapped over the books and they gave me the edition that did have 'Kabuliwallah' on page 115. As  I was reading it, the pages fell out and I thought what have I done, only to realise that these were the few pages that had been removed from the first edition, now slotted into the wrong book.  In the end, I got two 'Kabuliwallah's; these are the tiny beautiful details that make the world go round.



Sunday, 26 August 2012

Betty

I think all of us felt a child-like wonder seeing the beautiful Olympic cauldron at the opening ceremony a few weeks ago, and it was charming to hear Thomas Heatherwick, the designer, speak at the book festival a few days ago. He told us that the project had been code-named  'Betty' - after someone's dog - to keep it under wraps. Have been following Jon Snow's excellent  Paralympics reports on Channel 4. All of the athletes inspire sheer awe, whether their disabilities have been present from birth, or caused by injury (through accident or war), and I found the profile of the Rwandan amputees, now playing on the same side in sitting volley ball, hard to watch. And, like many, I've become fascinated by wheelchair rugby, I love the violence, in the same way that I love the violence of ice hockey (as a spectator, naturally). Here is a photo of the Paralympics Agitos  in Edinburgh, courtesy of a Twitter user.

Just learned one of my good friends is a volunteer in 'Speed of Light',  he just texted he is off to run up Arthur's Seat (it's dark now, 10pm)!

Monday, 9 July 2012

Rhubarb

Chopping rhubarb is utterly, bastard exhausting but it makes a lovely noise. And produces tons of water when you cook it (this, my first time). My friends gave me some home-grown at the weekend, the smell reminded me immediately of Henry and Michael, my mother's bachelor uncles, who wore green cardigans and were smoking and coughing every time you saw them. I think Henry only had one lung (I think he had TB). They would give us wee pokey hats (made from newspaper) of sugar and we would dip in the rhubarb from their garden and it was sour-sweet, delicious, a treat we looked forward to. Am still coughing, especially when I speak, it is beyond ridiculous, and exhausting. Tonight, I ate stewed rhubarb and thought of Henry and Michael in their old green cardigans with brown buttons.

Saturday, 5 May 2012

Tagore & Virginia

One of my friends is big on Tagore and when I told him I'm into birds now he mentioned the tiny poems Stray Birds. I dipped in - really dipped in, just read fragments - but found it all a bit sentimental - almost like 326 spiritual greetings cards, the kind you find in New Age shops - though these are translations, so maybe something is lost.

This one's a gem though, number 2:

'O troupe of little vagrants of the world, leave your footprints in my words.'

And I love this, from Virginia's essay 'On Being Ill':

'Comatose with headaches. Can't write (with a whole novel in my head too - it's damnable).'

That's from the introduction by Hermione Lee, I haven't read the essay yet.


Monday, 16 April 2012

Damp

Writing on the good and bad of Kindle, Fictionbitch says: My whole life has been wedded to the physicality of books and their shelves, the way they sat beside my bed on the little white bookcase my parents bought me, or on the planks and bricks I set up in my first-ever flat...' I love this, it resonates so much, the connection we have with the physicality of books (and book shelves!). This weekend, I was reading Teju Cole in the bath and afterwards the book was damp with crinkled pages, and although I'm having a troubled relationship with this novel, the damp book was beautiful lying on the floor, and I thought this is a thing of the past, crinkled books in the bath, when we have given up on our books altogether, what will we put on our shelves instead? A friend recently told me 'her dream house would have shelves with a Kindle and perhaps a shell or one perfect candlestick'. I do like this image - I hate clutter. Except books, I don't really mind 'organised' book clutter and I think - I know - I would miss my books as a backdrop.

Sunday, 26 February 2012

Tea for two

My mother recently made fun of my fine range of organic teabags - she's a Scottish Blend/Typhoo woman - and remarked that I must have my tea delivered by an elephant every day. This jasmine green is my current favourite, not at all bitter (some green teas are). And, last week, a friend brought me some of this Pekoe China Green, which is just exquisite, though I must get a decent strainer, I'm using a flour sieve.

Saturday, 25 February 2012

Giving away CDs that you don't listen to any more

I gave a lot of CDs to charity last week, they were gathering dust, I never listen to them, but I got a pang, thinking of the different loves and friends that once had all this music in the background. Still can't listen to Portishead without feeling hollow (not that I feel hollow now, just the memory of hollow is in the very vinyl - or whatever CDs are made of - of Dummy). Of course, I've hung on to Leonard Cohen and Frank Zappa and Aztec Camera and Bjork and Pulp and Violent Femmes and Mazzy Star etc, etc, etc (REM was tricky, they're just so whiny, I think I donated a couple but kept one).  I also had a vivid memory of one of my brothers' friends, in late 80s, demonstrating the indestructibility of a Morrissey CD by pouring beer on it. He was the first of any of us to own a CD. It was this song.

And discovered a gem I'd forgotten I had, Preisner: Requiem for my friend. This piece I particularly love.

And absolutely shocked (ashamed) to find I had Dido's Here with Me -   dear Jesus, what was I thinking?

Friday, 10 February 2012

Just lovely

Greenwords told me her wonderful news just before Christmas, I was overjoyed for her and her husband. She has now blogged her news and I was in tears reading what I already knew. Could not be happening to a lovelier person. She is a fine  writer too.

Sunday, 8 January 2012

Even

Even a minor cut (slicing iceberg lettuce last night, hacked my thumb instead, blood on salad, had to throw some leaves away - my friends are not cannibals, after all) makes me think of how fragile we are, physically. We are just so easily harmed.

Saturday, 29 October 2011

Memories

Sadly, two of my friends have lost a parent recently, aged early seventies, and yet my lovely stepdad just celebrated his 82nd birthday, he is physically doing pretty well, has had both knees replaced,  has survived prostate cancer and he always looks dapper, even when he is just shuffling round the house, I think that is because he is Danish - he never looks untidy. Still, he is now in his third year of vascular dementia, so there is much untidiness of thought. He calls Tinker, Tailor, Soldier, Spy  - Tinker, Tailor, Soldier, Spiderman, and he is not joking. I know about dementia, I volunteered for Alzheimer's Scotland for five years in the nineties and my wee aunt got dementia in her forties, a few years ago - the combination of Down's and dementia surely one of Nature's cruellest quirks, she died in July. My stepdad has always had quirky sayings and I'm not sure now whether what he says is a result of his memory being destroyed, or just his own way of saying things: I don't have eyes in my neck (I don't have eyes on the back of my head) and  It's on my house  (It's on me, I'm paying). It was 'on his house', and we had coffee in Waterstone's and on the way in he asked if they still had my book, so he remembered my book launch from three years ago, I was impressed. But later he fell, missing the last step, not realising the bannister curved in the other direction, I did not see this mishap, my mother was with him, on their way to the toilets, but he assured me  'he had no wounds'. I am so glad he is fictionalised as Nab in my novel, some of his wonderful traits in print forever.

Saturday, 3 September 2011

A few words...

I saw my book as an ebook for the first time, last night, my friend brought over her new Kindle. I'd seen the 'raw' epub file on Adobe Digital but it's not the same, you don't get a proper sense. I'd already downloaded the first Kindle for PC version, a year ago, but the spacing was wonky in parts so it was withdrawn. The spacing is thankfully fixed, though, because they can't convert asterisks easily, in Chapter 17, FAQs, it looks like one long conversation between the stranger and Helen rather than snippets. Original is here. I also came across 'the Tag', this should be the Tay, in case you are wondering, a river in east of Scotland, we have not gone to Germany.

I imagine in many books where the format is not exactly straightforward there are wee glitches, the technology is still evolving. So, yes, I am happy enough with my ebook, though it still seems odd to me, I cannot imagine reading one. Scrolling through the text, my arm got tired, repeatedly pressing the same key. My friend's a total convert, she downloads stuff to her phone too, and finds it thrilling. I think the key is to see ebooks as well as not instead of. We toasted my first glimpse of the Kindle TSoM with pomegranate juice, I would've preferred champagne but I have antibiotics for wisdom tooth (being taken out next week).

Still, paper books are objects of beauty. They are irreplaceable, to me.

Scrolling to the end of the ebook, I was struck by the epilogue, and probably the most important fragment of my novel, especially resonant now:

If we look through the round window, and really strain our eyes, we can see some of the powerful people who didn’t believe in the illness – GPs, psychiatrists, journalists – standing shamefaced in the corner. They are wearing dunce hats and stuttering apologies.

There has been a leap in ebook sales since 'The Threats' so I can only hope more people are reading and learning (and enjoying the novel as a novel). And for that I am very grateful to Kindle.

*I should add I've started using Kindle for PC just to download book samples and that is very handy. I love the immediacy.

** International Consensus Criteria for ME, July 2011, now on PubMed.

Saturday, 20 March 2010

Two books

Two lovely books coming out soon - the writers happen to be friends of mine:

The Woman Who Thought Too Much is award-winning poet Joanne Limburg's account of living with OCD. I love the title.

Like Bees To Honey is the inimitable Caroline Smailes' third novel. Set in Malta, a place close to Caroline's heart (she has family roots there), the cover has been handstitched by artist Becky Adams, a work of art in itself.

I haven't read either book yet, but encourage you to look them up and if they whet your appetite, get ordering! Joanne's is out in April, published by Atlantic Books, Caroline's in May, published by HarperCollins (The Friday Project). Congratulations to both of them!

Friday, 18 December 2009

Coincidence

I had a vile headache yesterday, I was in and out of bed all day. I listened to Night Waves, they discussed a modern version of Molière's Le Misanthrope which is on in London just now, I would love to see it. After the radio programme, I had Tartuffe in my head - though I studied L'Avare and Le Malade Imaginaire at uni, but for some reason Molière always makes me think of Tartuffe. Today, the postman knocked with some cards, and a package containing a wee jar of tartufi, sent by a friend in Rome. I love these tiny coincidences.

Saturday, 19 September 2009

Whiteness

The eyedrops I have switched to are white, it's like putting Tipex in your eyes and makes me think of the characters in Jose Saramago's novel Blindness, who suffer a contagious loss of sight where everything suddenly turns white. My friend told me of the book, recently, saying, Don't you dare even glimpse this just now, so I ordered it from the library. The writing is fabulous though it's more about an imbalance of power and society breaking down than anything else. I am a third of the way through. I have still not finished any of the last three books I have been reading.

Monday, 1 June 2009

Monstrous

An interesting article from the Telegraph on an ME urine test being developed by scientists in Belgium.

My friend was telling me her Polish boyfriend has started reading my book. A few pages in, he asked her what monstrous means. There is no 'monstrous', I said. I didn't use it, I would remember.

I was adamant.

She whipped out a copy of the book - she had brought it for me to sign for a medic she works with - and sure enough on page 5: The sofa bed was sticking up in the middle of the floor like a monstrous orange sculpture.

That's me told, I said. I remember now.

We both laughed.

Sunday, 7 September 2008

Reminded of Edna

The mother of one of my friends (who had severe ME for many years) emailed me to say how much she had enjoyed TSoM. She particularly liked the characterisation, and Jana and Helen reminded her of Edna O'Brien's The Country Girls, forty years on. I love when people are not just commenting on the portrayal of the illness but other aspects of the book too. (From some of the feedback - though very positive - I am wondering if those with ME tune so much into the illness that they perhaps miss other parts of the novel just cos they are so happy/relieved to see themselves reflected in Helen.) And I am thrilled to see the book in the Invest in ME newsletter today. I have just called this post 'Reminded of Edna', and again I am reminded of a TSoM incident, when Helen thinks of lines from an Edna St Vincent Millay poem. I wonder for how long I will associate random thoughts with the book! When will I forget?

Wednesday, 3 September 2008

A poem from twenty-five years ago

My oldest friend - since primary one - has sent me a poem. We are not in touch much these days, she lives down south, but she recently read TSoM and last night she sent me a poem that she had written in early 1983 after meeting me on the bus during the Christmas holidays. She said I seemed so scared - I had not yet been diagnosed and was going through all the tests and hell. She said she felt guilty afterwards because she had been distant, but this was because she was scared too, for me, and for herself. She was diagnosed with ME a year later and had to give up her medicine degree. She'd had symptoms for a long time (I didn't know, we were at different universities) and was probably the most talented girl in our  year - we were both academic but she was also athletic and musical and artistic. The poem fascinates me because it documents a moment that I have no recollection of. She says my hair was 'confused and deranged' (still is). The poem is girlish and intelligent but the last line is unexpected: 'And I know I should be dead too'.

I have put it on my pinboard. Thank you, A.

Saturday, 28 June 2008

Relatively speaking

My very artistic close friend, herself prone to anxiety, recently told me that after seeing me she often feels calm. That's nice, I said, wondering how on earth this could be. She went on: Compared to you, I feel like a phlegmatic lump. I smile when I think of her words, they seem like a compliment though they probably aren't. She has printed out the book cover for me with the new blurb - full size, full colour, I only had the old one, and it was in black and white. I am so impatient now to to get my hands on the real thing.

Saturday, 15 July 2006

Good For Your Eyes

My friend made a great North African dish, but I picked out the fresh tomatoes from the salad (I like tinned tomatoes but not fresh) and offered them to him. He said, I'll take them, they're good for preventing testicular cancer, and I laughed because it was so specific. We grew up thinking carrots were good for your eyes, and that was enough.

© 2006 NMJ